Screen 1

Interview Date

How did you hear about us?

scr1_recruited n Percent
Peer referral 304 71.4
Screening event 9 2.1
Gay City News 1 0.2
Metro ad 67 15.7
amNewYork ad 25 5.9
Other 20 4.7

Where is this interview taking place?

scr1_loc n Percent
Over the telephone 755 92.6
HTH2 Field Site 20 2.5
Other 40 4.9

As far as you remember, did you participate in the “Heart to Heart 1” Project, which was conducted by NYU in 2012-2014?

scr1_hth1 n Percent
No 767 94.2
Yes 9 1.1
Don’t Know 37 4.5
Refuse to Answer 1 0.1

What was your biological sex at birth?

scr1_sex n Percent
Male 536 65.8
Female 277 34.0
Refuse to Answer 1 0.1

Current age (automatically calculated)

Younger than 36

rand_condition n Percent
Younger than 36 101 12.4
36 or Older 713 87.6

Where have you been living during the past month, that is, what borough or other location?

scr1_livingin n Percent
Manhattan 242 29.7
The Bronx 317 38.9
Queens 38 4.7
Brooklyn 204 25.1
Staten Island 11 1.4
Larger NYC metropolitan area 1 0.1
Outside NYC metropolitan area 1 0.1

Do you have any plans to leave the New York City metropolitan area in the next year?

scr1_leave n Percent
No 799 98.3
Yes 14 1.7

Do you consider yourself Hispanic/ Latino?

scr1_ethnicity n Percent
No 623 76.6
Yes 190 23.4

How would you describe your racial background: that is, which group or groups describe you best?

a, Native American or Alaskan Native

scr1_race___a n Percent
Unchecked 790 96.7
Checked 27 3.3

b, Asian

scr1_race___b n Percent
Unchecked 812 99.4
Checked 5 0.6

c, Black or African-American

scr1_race___c n Percent
Unchecked 196 24
Checked 621 76

d, Native Hawaiian or Pacific Islander

scr1_race___d n Percent
Unchecked 813 99.5
Checked 4 0.5

e, White

scr1_race___e n Percent
Unchecked 762 93.3
Checked 55 6.7

f, Other

scr1_race___f n Percent
Unchecked 725 88.7
Checked 92 11.3

g, Don’t Know

scr1_race___g n Percent
Unchecked 769 94.1
Checked 48 5.9

h, Refuse to Answer

scr1_race___h n Percent
Unchecked 815 99.8
Checked 2 0.2

Can you take part in activities that are conducted in English and/ or Spanish?

scr1_lang n Percent
No 4 0.5
Yes 808 99.5

Have you ever been told you have HIV?

scr1_hivstat n Percent
No 4 0.5
Yes 809 99.5

Think about when you were first told you have HIV. Was that within the past 6 months?

scr1_firsthiv_6mths n Percent
No 787 97.3
Yes 22 2.7

Was that within the past year?

scr1_firsthiv_recently n Percent
No 729 92.9
Yes 56 7.1

We know people sometimes decide not to start HIV medication, or they start and stop HIV medication. In your whole life, have you ever taken HIV medication, also called antiretroviral therapy?

scr1_hivmeds n Percent
No 60 7.6
Yes 727 92.4

Have you taken HIV medication or antiretroviral therapy at all in the past 6 weeks?

scr1_meds_past6wks n Percent
No 195 26.9
Yes 529 72.9
Don’t Know 2 0.3

How much of your HIV medication did you take in the past 6 weeks?

n Mean sd Median IQR Min Max
156 74 28 84 50 0 100

Did you take at least one HIV viral load test in the past 6 months?

scr1_meds_past6wks_q2 Count Percent
No 13 8.3
Yes 142 91.0
Don’t Know 1 0.6

We want to know the result of your last HIV viral load. Were you told the result of that viral load test was “undetectable”?

scr1_meds_past6wks_q3 Count Percent
No - not undetectable 31 21.8
Yes - undetectable 103 72.5
Don’t Know result 8 5.6

Have you ever seen a health care provider specifically for your HIV medical care?

scr1_provider Count Percent
No 22 8.6
Yes 235 91.4

We know it can be hard to make it to health care appointments. In the past year, how many different times have you seen a health care provider specifically for your HIV medical care, if at all?

scr1_appts Count Percent
0 8 3.4
1 23 9.8
2 64 27.2
3 57 24.3
4 38 16.2
5 or more 45 19.1

Think about these appointments you attended for HIV Care. Were 2 of them at least 3 months apart, as far as you remember?

scr1_appts_apart Count Percent
No 12 9.2
Yes 116 88.5
Don’t Know 3 2.3

We know people sometimes have to miss their scheduled appointments without cancelling in advance. In the past year, how many appointments with your HIV health care provider have you missed?

scr1_appts_miss_year Count Percent
Never missed an appointment 22 10.3
Once in the past year 9 4.2
Twice in the past year 53 24.8
Three or more times in the past year 126 58.9
Don’t Know 4 1.9

We know people sometimes have to miss their scheduled appointments without cancelling in advance. In the past six months, how many appointments with your HIV health care provider have you missed?

scr1_appts_miss_recently Count Percent
Never missed an appointment 2 10
Once in the past six months 1 5
Twice in the past six months 2 10
Three or more times in the past six months 15 75

During the past month, how often have you heard noises or voices that other people say they can’t hear?

scr1_noises Count Percent
Never 173 72.1
Almost Never 15 6.2
Sometimes 38 15.8
Fairly often 6 2.5
Very often 8 3.3

Now we would like to ask about your experience with this interview. How likely would you be to recommend this interview to someone else?

scr1_recommend Count Percent
not at all likely 7 0.9
somewhat likely 60 7.4
very likely 434 53.5
completely likely 310 38.2

Are any of the following true, making the participant ineligible for the study?

scr1_ineligibles Count Percent
Person participated in HTH1 4 0.5
Participant disclosed info that makes him/ her ineligible 213 26.4
Other 1 0.1
Not Applicable 590 73.0

Do you have written documentation of your HIV status with you today and would you be willing to show it to the interviewer now?

scr1_docs Count Percent
No 9 60
Yes 6 40

Select the written documentation you have seen of participant HIV status

scr1_docs_choices Count Percent
HIV Lab results 1 16.7
Full Medical Record with diagnosis and name 3 50.0
HIV meds or prescription w/ participant’s name 2 33.3

Would you be willing and able to provide written documentation of your HIV status later to participate in another part of this study?

scr1_docs_notice Count Percent
No 1 0.5
Yes 203 99.5

Reasons for Ineligibility

Too Young (<18)

Too_Young Count Percent
FALSE 813 99.5
TRUE 1 0.1
NA 3 0.4

Too Old (>65)

Too_Old Count Percent
FALSE 783 95.8
TRUE 31 3.8
NA 3 0.4

Residence Outside of Study Area

Outside_NYC Count Percent
FALSE 816 99.9
TRUE 1 0.1

Planning to Leave Study Area Within Next Year

Leaving_NYC Count Percent
FALSE 799 97.8
TRUE 14 1.7
NA 4 0.5

Neither Latino/Latina Nor African-American

RACETH Count Percent
FALSE 781 95.6
TRUE 36 4.4

Cannot Take Part in Activities in Either English or Spanish

Language Count Percent
FALSE 808 98.9
TRUE 4 0.5
NA 5 0.6

Participated in HTH1

HTH1 Count Percent
FALSE 767 93.9
TRUE 47 5.8
NA 3 0.4

Does Not Self-Report HIV Infection

HIVNEG Count Percent
FALSE 809 99.0
TRUE 4 0.5
NA 4 0.5

Diagnosed with HIV Infection Within the Past Six Months

RECENTDX Count Percent
FALSE 787 96.3
TRUE 22 2.7
NA 8 1.0

Took ART Within the Past Six Weeks

RECENTART Count Percent
FALSE 197 24.1
TRUE 529 64.7
NA 91 11.1

Good HIV Appointment Attendance

ENGAGED Count Percent
FALSE 218 26.7
TRUE 16 2.0
NA 583 71.4

Often Heard Noises or Voices Other People Cannot Hear

Noises Count Percent
FALSE 803 98.3
TRUE 14 1.7

Screen 2A

Interview Date

Do you agree to give us information so we can contact you in the future? You can decline to give us contact information, but you will need to give us contact information to participate in this study.

scr2a_consent_contact Count Percent
Yes 150 100

Do you agree to show us proof of your HIV status? You can decline to provide proof of HIV status, but you will need to show us proof of your HIV status to participate in this study.

scr2a_consent_proof_status Count Percent
Yes 150 100

Do you agree to give us a hair sample or blood sample? You can decline to give a hair or blood sample, but you need to give us a hair or blood sample to participate in this study.

scr2a_consent_sample Count Percent
Yes 150 100

Do you have written documentation of your HIV status with you today and would you be willing to show it to the interviewer now?

scr2a_docs Count Percent
Yes 144 100

Select the written document you have seen of participant HIV status

scr2a_docs_choices Count Percent
M11Q Form 6 4.2
HIV diagnosis letter on letterhead from testing site (NOT anonymous testing site) 3 2.1
HIV Lab Results 50 34.7
Full Medical Record with diagnosis and name 20 13.9
HIV meds or Prescription w/ participant’s name 56 38.9
Other 9 6.2

Please write the name of the written document you have seen that documents the participant’s HIV status:

scr2a_docs_other
letter from PCP in letterhead
Letterhead from HASA with pt’s full name
letter on letterhead from Housing Works case manager
letter from HIV program, on letterhead, with diagnosis information
HASA letter
HIV diagnosis letter on letterhead from HIV day program
RNA Bioref results with us
Official letter from pt’s counselor at Housingworks, detailing pt’s HIV status.
HASA housing letter with letterhead

Would you be willing to provide a few pieces of hair from your head that we will test for HIV medications? This test is only for the research and not for medical reasons.

scr2a_hairsampleconsent Count Percent
Yes 150 100

Would you be willing to have a sample of your blood taken by a needle so that we may test it for CD4 count and HIV viral load? This test is only for the research and not for medical reasons.

scr2a_docs Count Percent
Yes 144 100

Would you be willing to let the study contact your medical provider, if you have one, to get information about your care? This is only for the research and not for medical reasons.

scr2a_bloodsampleconsent Count Percent
Yes 150 100

Would you be willing to let the study contact your medical provider, if you have one, to get information about your care? This is only for the research and not for medical reasons.

scr2a_mrfconsent Count Percent
Yes 150 100

Would you be willing to participate in a one-time program (lasting about 1 hour) with a staff member where you learn more about the study and HIV disease and treatments?

scr2a_particpateconsent Count Percent
Yes 150 100

Would you be willing to be randomly assigned, which means being chosen by chance, to participate in one or more programs that focus on HIV care and treatment, for between about 3 and 8 months?

sc2a_randconsent Count Percent
Yes 150 100

Is the participant preliminarily eligible?

scr2a_prelim_eligibility Count Percent
Pre-eligible 150 100

Screen 2B

Interview Date

Hair sample obtained?

scr2b_sample_hair Count Percent
No 105 71.4
Yes 42 28.6

Date hair sample collected.

ART detected?

scr2b_shair_status Count Percent
NA 150 100

Blood sample collected?

scr2b_sample_blood Count Percent
Yes 150 100

Date blood sample collected.

Date blood sample sent.

Date blood sample results received.

Name of blood test performed.

scr2b_sblood_ttype Count Percent
HIV-1, RNA, ULTRA/PCR, VIRAL LOAD 148 99.3
iMMUNE DEFICIENCY PANEL CD4/CD8 w/CBC 1 0.7

Please write the name of the blood test performed:

scr2b_sblood_ttype_other

Blood sample result <= 1000 pp/mL?

scr2b_sblood_status Count Percent
No 60 40.3
Yes 89 59.7

If No, enter absolute value (log10 transformed)

n Mean sd Median IQR Min Max
60 5 1 5 1 3.158362 6.303196

Is the participant eligible?

scr2b_final_eligibility Count Percent
No: Not Eligible 89 59.7
Yes: Eligible 60 40.3